Tuesday, October 22, 2013
My Brain Cyst and Need for Surgery
For a few years now I have experienced migraines on a daily basis. At times they are worse than others, but they never go away. For the last year I have also had a loud noise sound in my ear to my heart beat. This also never goes away. My migraines have caused a big sensitivy to light, sound, and smell. If I don't stay in a dark house most of the time, I deal with alot of pain behind my eyes. I have been working full time through this for the past few years. It has made my life at home difficult because once I get home from work I am in so much pain I can't do verymuch with my family. It has gotten worse in the last few weeks and I am no longer able to function normally. I have gone on a medical leave from work and am trying to do everything I can to get this fixed, so that I can go back to work and back to taking care of my family properly. I have tried several different migraine medications and none of them have been affective. Because of this my doctor had an MRI done to see if anything serious was going on in my brain. The results of the MRI showed that I have a 1.7 cm pineal gland. I was then referred to a neurologist who asked me to go to an optometrist to see if they can see pressure in my head behind my eyes. And they advised thete is. Because of this I was sent to a neurosurgeon to see what they think needs to be done. I was told that the pineal gland did not need to be removed because they believe it is causing no problems and that it was to risky to remove. It is true that a pineal cyst .5 cm or smaller is considered common and usually has no side effects. However mine is 1.7 cm large and according to the National Organization for Rare Disorders classifies any pineal cyst larger than .5 cm are rare. Like most cyst it will also enlarge over time. Once it gets big enough it will start to cause actually brain damage. So of course my husband and I looked deeper into research as this seems like a substantial problem and don't understand how I'm supposed to live with these side effects forever. The reason the surgery is so risky is because in this area and most places in the US they must drill either 6 in wide hole in your scull that is put back after surgery or a hole the size of a quarter that is never put back and is expected to partially grow back over 10 years. Because the cyst is located in the center of the brain, they must move brain matter and possibly cut some of it to reach this area. With these procedures there is a very good chance of being blind or paralyzed as well as other things. However, as with most cyst in this area, it will continue to grow until removed. Once it gets large enough, I would eventually have some brain damage and at that point they would finally do an emergency surgery to remove it. However, I do have better news. We have located a doctor in Los Angeles, CA who can do a different sugery that is much safer. He is with the Skull Base Institute. His procedure makes a small incision the size of a dime behind my ear. He then uses endoscopic tools to access the pineal area. With this procedure he can follow natural paths and not have to move or cut brain matter. This diminshes the risks immensly. It also only requires 2 days in the hospital and most are ready to go back to work in 2-3 weeks. the other procedures take 6-8 weeks to recover under the best circumstances and with the worst have side effects for the rest of your life. You can read about the procedure here: http://www.skullbaseinstitute.com/pineal-tumor/. We were do overjoyed to find something that will be able truly get rid of these symptoms and allow me to live a normal life. The surgery will be extremely expensive, however we can at least set up payment plans for this. The immediate issue is trying to get to California. Me and my husband will need plane tickets to get out there, a hotel to stay at while not in the hospital, transportation, and food for the stay. If everything goes as planned we should only be there for a week and a day or two. We were obviously not prepared for this and are not sure how long it will take to save up for the trip for the procedure. If anyone would like to donate to help us get there sooner, you can donate through my paypal account. If you can't donate I understand and would still appreciate your thoughts and words of encouragement.
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Love u girl thoughts and prayers are with u
ReplyDeleteI am Sophie from Canada, I once suffered from a terrible and Chronic pineal cyst ,since i was 30 , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly go out of breath,and this illness was really terrible especially when am going out with my friends, i have this constant disorder for about 15 years, this was really a terrible ailment ,on thin one day that i was going through the internet,and i came across a post of Mrs Shelley on how his husband was been cured from pineal cyst through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine, i used it for 1 months as prescribed by Dr Williams and i was totally cured within those week of usage,on thin now i have not experience any sign or characteristics again . for more information you can email him on drwilliams098675@gmail.com for help
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